Picks and Pans Review: Finding Her Voice

UPDATED 03/03/2008 at 01:00 AM EST Originally published 03/03/2008 at 01:00 AM EST

SCHUYLER'S MONSTER
by Robert Rummel-Hudson |

bgwhite bgwhite bgwhite  



REVIEWED BY VICK BOUGHTON

MEMOIR

"Special needs parents are fools, every one of us," writes Rummel-Hudson. "We tilt at windmills and charge into battle with the monster, rubber swords drawn." The monster here is a rare brain malformation, polymicrogyria, which makes his daughter Schuyler, now 8, unable to speak. Based on his blog, Rummel-Hudson's memoir offers a moving account of his and wife Julie's unrelenting efforts to give their buoyant little girl a way to communicate. Nothing comes easily. While she's a toddler, Schuyler's condition, which also accounts for some motor delays, is misdiagnosed as a type of autism. Later, her parents butt heads with ill-informed educators. Meanwhile, a lack of funds for top-notch care and sophisticated communication tools is a constant worry. But today, thanks to aggressive intervention and Schuyler's own determination, she attends a Plano, Texas, elementary school, where she relies on what's known as an Alternative and Assistive Communication device. By punching onscreen keys, Schuyler can form sentences that are translated into an age-appropriate electronic voice. To her family's delight, she has plenty to say.

Your Reaction

Follow Us

On Newsstands Now

Robin Roberts: How Loved Saved Me
  • Robin Roberts: How Loved Saved Me
  • Emma and Andrew: All About Hollywood's Cutest Couple
  • Prince George! More Yummy Photos

Pick up your copy on newsstands

Click here for instant access to the Digital Magazine

Advertisement

From Our Partners

Watch It

Editors' Picks

From Our Partners



Sign up for our daily newsletter and other special offers.
    Choose your newsletters
Thank you for signing up! Your request may take up to one week to be processed.
    see all newsletters